Friday, November 30, 2007

Sickness

Isaac has been sick for over a week now, and it's been hard! First, we took him into the doctors last Friday and found out that he had an ear infection. So, we started antibiotic. But, he seemed to get worse, so we took him back in on Monday, and found out he has RSV as well! We still have a nebulizer from the last time he had it last season, so the doctor just sent us home with some sample medicine since we won't have insurance until tomorrow! Last time when he had RSV, he had a really bad day, but as soon as we started the treatments, he quickly improved and got better. This time has not been like that at all! I actually took him back in on Tuesday because he had a worse night! They gave him a treatment there, and this time gave him steriods, and we came back home. He just didn't seem like he was getting over it very well. Wednesday was a little better, but still not much, and yesterday he woke up and seemed just as bad, so I was actually planning on taking him back in, but he took a nap, and about 20 minutes before I was going to take him in, he woke up and actually showed a lot of improvement! So, I didn't take him in! He's still had a bad cough that makes him dry-heave, and he's still been cranky, but finally he's at least playing and eating a little bit of some things! It was so hard, though, because for the 3 days that he was really sick I was debating all the time whether or not to take him into the ER or not. I hated having to feel so responsible for his well-being just because I was afraid of messing up and having some huge consequence happen to him because of it! But, at the same time, I didn't want to just rush him to the ER because I know what they would have had to do to him, and I know how much it would have traumatized him, and me, and I didn't want to do it unless he really needed it! So, I was so paranoid about if he was okay the whole time, but I was also super paranoid about going in! It was probably more exhausting mentally than physically! I'm so grateful he's finally feeling better! But, now EmmaLee woke up congested and coughing a little today, and I am sooooo hoping she doesn't come down with it because as hard of a time as Isaac had with it, EmmaLee would probably take it much harder because she's still so little. It scares me, even though I try not to let it, to think of any of my children in the hospital, especially with lung related issues! Even though you choked and were probably brain dead, technically you passed away from being incredibly sick from after effects of choking. You had a TON of fluid in your lungs, and the whole time we were in the hospital with you before you passed away, it was your lungs that were being treated and causing so many problems! We finally made the decision to let you go because it was your lungs that were having problems. Your oxygen levels started to drop and inspite the best efforts of the doctors, they were having a hard time keeping your lungs from basically drowning in fluid. They were down to one last possibility, but it involved taking out the respirator, which would have been extremely messy and physically traumatizing to your poor little body, and there was a much greater chance you wouldn't survive the procedure than it actually working. I remember standing over you and listening to the specialists talking about it and trying to decide if they should attempt it, and as I thought about it, I just knew I couldn't let them do that to you; you'd been through enough! That was the moment I knew I was going to have to let you go. I emotionally told them no, they couldn't do that to you. We already knew you were brain dead and had pretty much a 0% chance of ever living a normal life. Even if you had survived, you would have been a vegetable the rest of your life and pretty much on some kind of life support for the rest of that life, however long it would have been. So, it was at that time we made the decision to stop one of your medications. You're heart was the only organ in your body that was functioning even somewhat under it's own power, and even then it was only happening because of a medication. We know that because the night before you passed away, they had to replace the medication packet, which literally stopped the flow of that medicine into your body for about 5 seconds, and when that happened, you crashed, and they had to code blue you and start CPR. We were actually talking to the doctor about something in the room when it happened, and I remember him looking at us while they were trying to stabalize you again and asking us if we wanted them to continue trying or just let him go. I remember just crying and not knowing what to do, and Rob told him that he did want them to keep trying. It only took a few minutes, but they did stabalize you again, but it was so hard to sit there and watch it that your dad and I decided that if it happened again, we would just let you go. So, when they were talking about the respirator treatment, all I could picture in my head was another incident like that and loosing you in such a dramatic situation, and I couldn't do it. I wanted you to be able to pass away peacefully, not in a caotic, high tense situation, surrounded by strangers doing their best to keep you here when it wasn't meant to be. So, we decided it was time to let fate happen. The next decision we had to make was how to let everything happen. If we did nothing, all your vitals were just slowing down and starting to fail, like your oxygen intake. It was like watching you die slowely, and we had no idea how long it would take. It could have taken only a couple of hours, or it could have taken a couple of days! It seemed more cruel to me to let you go so slowely like that, so we asked what would happen if we took you off your heart medication. They said it would be peaceful, and would probably happen within a couple of minutes. I also felt like if you were meant to stay, since it was the one thing that you were somewhat doing on your own, your heart would keep beating even without the medication. So, we decided to stop the medication. But, before we did that, we let everyone who was at the hospital come in and say good-bye. Up to this point, the closest I had been able to be to you was laying by your side because you had so many things hooked up to your poor broken body that were so important that we couldn't risk anything pulling them off. Well, when we made this decision, they actually let us hold you. So, your dad and I took turns holding you for the next little while; I don't remember for sure how long it was. Time kind of didn't exsist for me at this time. Finally, Rob and I got a few minutes with you byourselves, and then we actually invited all the family back in again for your last few minutes with us on this earth. I remember holding you and once they stopped the medicine, watching your #'s and watching them drop lower and lower, until they finally stopped. I knew you had gone because a little bit of fluid came up into the tubing in your mouth, like it was a last sigh. But, I still had to ask the nurse, and when she confirmed it, I remember just burying my head into your still little body and just sobbing. So, when your siblings get sick and we have to worry and check their oxygen levels, it really brings back memories of loosing you, and it's really hard and stressful! It has almost the same amount of emotion as when someone chokes. It's like you died from two things, and I don't handle those two problems well now. So, I really hope EmmaLee doesn't get sick because I think I'm all emotioned out from trying to deal with Isaac!

1 comment:

Laura said...

Hi Diana. I found this site and read all your posts. Which, if you know me at all, means that I have been crying for the last hour.

I'm so happy that you are writing about your experiences with grief and hope. I have a testimony of the power of "processing" and I think writing is one of the best forms of it.

I think about you a lot. Oddly, Caydin's death has affected me more than any other and I'm not sure why. The memory of you crying at Caydin's casket brings a tear 100% of the time. I think it's because watching you with Caydin always touched me. It was so clear that you adored him. Not in a psycho-obsessed-mother way, but in a pure-joy kind of way. Your eyes just sparkled when you played with him. I'm sure you feel the same way for your other children - you just seem like the kind of woman who truly delights in her family and it's so beautiful.

I can at some level empathize with your feelings of grief. I think you know my brother Trevin has pretty severe paranoid schizophrenia, which is a disease that leaves all traces of the person's former life and personality behind. The brother I grew up with and loved to play with and hang out with is gone. It is sometimes hard to process because his body is here, but he's not.

I've struggled with a lot of anger, heartache, and grief over the years, and I it hasn't been easy for me or the rest of my family. I truly hope and even believe that the atonement will make all this better, but sometimes that comfort doesn't seem like enough for the end to justify the means. But somewhere inside I believe it anyway.

I know that losing a brother to a disease is not the same as losing a child to a horrifying accident, but I wanted to let you know that what you're going through is normal and even healthy I think. Of course you miss him - you wouldn't be you if you didn't. He's your baby, and I bet his misses you too.